Hi, Roxanne,
I suggest you read Stephen Buhner's book Healing Lyme. I healed myself of Lyme following his herbal protocol as have many others.
Dan Farella, an herbologist, occasionally gives workshops on healing Lyme, in which he references Buhner's work. I haven't been, but I know people who have gone, and who find them very useful. Dan's website is
http://returntonature.us/You can get on his mailing list there.
Several people I know are following an herbal protocol to heal Lyme, with Buhner's or another. They might be interested in a support group, if you choose to go the herbal route. Let me know and I'll ask them. I'd be willing to come and talk about my experience. Breath and meditation were also helpful to me.
Also, I'd suggest posting a notice on the Co-op Bulletin Board (the actual one, not the virtual one), in the Co-op newsletter, and at the Reformed Church of HP.
In my opinion, a doctor is the last person to go to for with help with Lyme.
Good luck and good health to you whichever route you follow. I know you've been fighting this awful scourge a long time. Healing is possible.
ellen